INTENS has been working with The Short Gut Families Support Group to hear and answer their questions about our research. The support group, which is a global network of support for anyone ‘who knows and loves a child with short gut syndrome or a similar diagnosis’ is run through Facebook and has over 3000 members. Being in dialogue with those affected by short gut syndrome is of the upmost importance to INTENS, in sharing insight and shaping future priorities for research. We worked with amazing members of the group to facilitate the dialogue. They helped compile a list of questions for the INTENS research team from across the group members. These are just a few of the 40 invigorating questions put to the team:
- What is tissue engineering and how is it different from stem cell?
- Are there promising findings so far?
- Would researchers be able to, or are they looking at ways to differentiate the different sections of small bowel?
- Would they be able to replace just duodenum, jejunum or Ilium?
On the evening of Friday 9th August, we all connected through a webinar to bring the Q&A alive. The recording of the webinar is available here.
We look forward to continuing the dialogue over the final year of the project.